Contact

 

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Thank you for taking the time to get to know me better. 

To get in touch with me for GBS support or to arrange speaking engagements/ awareness events, please contact me at holly.gerlach@hotmail.com

If you or someone you know has been recently impacted by GBS, be sure to also check out my article: Tips for families of those recently diagnosed with GBS. 

 

 I am located in Edmonton, Canada. You can also find me on Instagram and Facebook. 

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If you would like to purchase a personally autographed copy of my book, please email me at holly.gerlach@hotmail.com with the following information:

*Your mailing address20121210-154246.jpg

* Preference of book (Hardcover or Softcover)

*Who you would like the book to be autographed for

A final price will be provided prior to shipping. All payments are calculated in US funds and can be made through Paypal to holly.gerlach@hotmail.com.

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72 Responses to Contact

  1. Hi Holly
    Great job Holly don’t give keep fighting.
    My name is Sheikh and I’m too a GBS survivor I had a GBS since 2011 after the treatment for the GBS I was in physical therapy for eight months, I had to learn to walk, eat, hold all over again, I recovered about 60% and that’s all I can get. I have to use the leg braces for my walking because I don’t like to use Cane or walker. I still get a week when I’m walking, I can’t lift heavy weights so many things I want to do but I can’t.
    I have a wonderful wife and beautiful kids. My wife is the greatest gift from God, with her support and Family support I was able to survive the GBS condition.
    I just want to let someone know my short story.
    I want to wish you the best in life, keep fighting don’t give up

  2. Gonny de Groot-vd Veen says:

    Hello Holly, I saw your story on facebook today. What a special story and what you are a special person to return with as much force as you are now. Fortunately, you can educate your daughter as you had in mind. I hope you can have a long and healthy life and wish you all the happiness of the world for you and your family. (Hope the translation has gone well from the Netherlands. With the best wishes, Gonny de Groot, The Netherlands.

  3. Vera says:

    Hola
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    Saludos

  4. Marina says:

    Te contacto para redisear o hacer Tu nueva pagina web hollygerlach.com. Podes ver mas informacion aqui
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  5. Vera says:

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    Consultenos hoy mismo.
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    Saludos

  6. Marina says:

    Hola
    Te contacto para redisear o hacer una nueva pagina web. Tenemos precios accesibles para todos, consultanos hoy mismo.
    Envianos Tu telefono o puedes contactarnos al 15 3307 7029, tambien puedes escribir a serviciomarketingdigital@gmail.com o envianos tu Skype y conversamos.
    Feliz Ao!
    Aguardo tu contacto
    Saludos

  7. john says:

    i just watched your story on wimp.com and it hit home as my father won the GBS flu shot lottery also several yrs ago he was lucky and it only got his legs but took several months to recover… I wonder if you had got it from the flu shot also,,,, i saw an article that japan was watching for any increase in GBS this year as they know how it comes from the flu shot…I will never get a flu shot in my lifetime ..i know the odds are 25,000 to 1 but that is still to great…good luck with your life..John

  8. Jessica Achee says:

    Holly,

    I sent you an email regarding my brother in law. Any information you can provide will be greatly appreciated.

    God Bless😘

  9. Doreen Kaelin says:

    Remarkable story – you are an amazing young woman!
    My spouse has GBS/CIDP – GBS is a very ugly side effect to the FLU Shot.
    We are retirees – live in southwestern Ontario – however, because he has to have a treatment every 2 weeks – our lifestyles have be extremely limited.
    He got GBS Feb. 2012 while were wintering in Texas – Texas hospital said it is from the Flu shot.
    Texas hospital were absolutely wonderful – it was very touch & go the first night – did not know if he would make it through the night
    – relapsed in May 2012 – hospitalized 1 mos.
    Relapsed again last year – He spent 4 mos. in hospital – devastating relapse – he went through everything you experienced except the trach.
    I see him failing somewhat again now. He just saw the Neurologist on Monday – nothing more they can do for him –
    The FLU Shot has mercury, formaldehyde as well as many other harmful ingredients in it – if you haven’t already – please research the FLU shot – Pneumonia shot and so many other immunizations before ever considering any of them.
    I hope you don’t mind me saying but I would seriously be reconsidering giving your sweet little girl a flu shot – I can only suggest it would be much safer to trust her own immune system instead.
    The Flu shot is so strongly recommended and pushed on us yet there is no compensation packages put into place for the individuals it affects with GBS when the USA, Quebec and I believe 16 other countries do have compensation in place.

    Holy – I would so love to purchase a signed copy of your book – you are a great inspiration!

  10. Patrick McMullin says:

    Just watched your journey to beat GBS. I too took that journey in 1985 and your video so vividly mirrored my fight. I admire your strength and determination from start to finish and your wanting to show others that they can overcome regardless how severe. I know, at my worst, your story would have been very inspiring as I am sure folks who find themselves dealing with this nasty diagnosis do today. Although I never fully recovered(paralysis below knee both sides and dexterity hands) it brought me to happy tears that you fully recovered and the grit and determination you showed to get there should inspire all. Thank you so much for sharing and many years of health/happiness to you and your wonderful family.

  11. Nancy N.-E. says:

    Hi Holly, I watched the video of you. Phew, that’s really a sad movie. I got the creeps. I’m glad that you all goes well. I have a question: Will the book be also in German? I would be really very happy if I will read the German book from you, if the book is still translate in German. Sorry that I do not write well in English. I hope you understand my texts all right. I wish you all the best. Best Regards Nancy N.-E. from Germany

  12. Anonymous says:

    Is it possible to communicate with you via email?

  13. layla mohammed says:

    Hi holly
    My name is Layla I’m from saudi Arabia-middle east , i just knew your story it’s very inspiring and can’t wait to read your book .. holly currently I’m Respiratory care student , so my interest is not only by your outstanding fight of the disease ,but also in a medical view i would love to know every thing that made you happy and every thing that made you suffer ,for the sake of my patients , So you’re not only inspiring us in the medical field by reminding us why we’re working ! ,but also you will help other patients by your experience ,I hope i’ll find my answers in your book.
    Thank you so much for your courage to share your story with us , you’re definitely a hero ..

    wish you happy life with your family .. and you have a cute little girl God save her for you *.*

  14. Kristina says:

    So happy for your recovery! We have a family member who is now 9 month into one for the most severe cases of GBS. If you are interested, his wife and children are keeping a blog. Any encouragement is appreciated!

  15. Elizabeth Kerdagha says:

    Hi Holly,
    I am Elizabeth Kerdagha, from Malta Europe. I’m a 40 year old Paraplegic in a wheelchair from birth, and I’m a house wife and a mother of an almost 10 year old girl. What brings me to write to you today is because, I watched your Youtube video, and your story inspired me and gave me hope again. Due to my health issues and personal problems, I get very depressed and very demotivated too unfortunately. I need a huge self-esteem boost, thus Holly, I would appreciate it very much, if you would become my friend on Facebook if that’s fine with you too of course. Holly, I am closing this message by saying, I look forward to receive a positive reply from you in the near future.
    Yours Sincerely,
    Mrs. Kerdagha.

    • hollygerlach says:

      Thank you so much for your message, and I am happy my video made its way to you and inspired you. What I learned from GBS is that life is never easy, but it is definitely worth it!

  16. Anonymous says:

    Dear Holly, my name is Lucie and I live in Prague, Czech republic, Europe. My boyfriend is unfortunately fighting with this horrible disease now and everyone around him is trying the best to support him to win. I do not need to receive any message from you but this way I would like to thank you very much from all my heart. After I had found you and your story on the internet including your heartbreaking video, I told everything to my boyfriend and he was so curious about everything. I cannot tell you that it was, is and will be still hard work and difficult for both of us but as I said I thank you so much to share your story and I already know we will manage all this together. You did it, we will do it as well. I love him and one day we would like to be a family like you are. Good luck, lots of health to you and everyone in your family. Thank you again. In case you would like to write me, my email is sunny189@seznam.cz, but as I already said, I do not need any answer, I just wanted to tell you that I am greatfull I have met him and you as well. Thanks.

  17. Terri Esteves says:

    Hi Holly

    I watched your video on Youtube today and I was inspired. A few weeks ago I woke up with numbness and tingling in my arms and legs and it quickly spread to the rest of my body. By the end of the day, I was in the ER. My body felt paralyzed. I could barely speak and I had double vision. The doctors thought it was MS, GBS, Lyme Disease, carpel tunnel, or tumours. I was rushed to the ER four times before I met with the neurologists and was admitted at the U of A hospital. They thought they knew what it was, but they discharged me a few days later with no clear diagnosis. Although I had the same symptoms as GBS, they could find nothing in my tests. I could not walk and had to use a walker and I was very sick and could not eat or drink. It got to the point where I could not breathe. I felt like I was trapped inside my paralyzed body. Everyone around me was so supportive but I still felt alone. It was awful. I believe in miracles and I also believe in the power of prayer. I prayed hard to heal and to get well. Each day I am making small steps to recovering. I am thankful this undiagnosed illness I have is leaving me. I could not imaging going through months of GBS like you did. It helps to know that other young people can survive these crippling illnesses. I had my 30th birthday today and a couple weeks ago I thought I was dying. Thanks for your inspiration and putting your story out there for others to see and hear. All the best on your journey!

    Terri

  18. Leah says:

    Hi there, Holly!
    I had Guillian Barre too. Luckily my Dr. remembered the symptoms from medical school. She had never seen it before. I very lucky. I was just short of being on a ventilator as I lost the urge to breathe but got O2 and shortly after, my spun plasma began to work although not without the worst flu symptoms I ever had as a side effect. After months of therapy and leg braces, I was able to walk with a walker, then a cane, and then all by myself.
    I never got back a lot of my small motor skills, balance, and thigh strength, and chronic fatigue, but it hasn’t stopped me from setting an example for how to succeed for my kids. I’m now a laborer doing pipeline construction. I’ve learned to compensate for all of my missing abilities and nobody is the wiser.
    I’m so happy today that I found your blog and video on UTube. You’re the inspiration I needed today.
    Thank you!

  19. Hello Holly I was diagnosed with GBS in October and got a flu shot 3 days later . I am struggling with my recovery it seems I have had it very severe minus respiratory .

  20. Janie Crelin says:

    Hi Holly! I’m planning to get your book and read it very soon. My father has GBS. He is in week 6, still mostly paralyzed from the neck down and on a vent. He was able to wiggle fingers on his right hand and move his shoulder today, as well as breathe 13/minute for ten minutes with only pressure from the vent. He is 66 years old, and this is his SECOND time to get GBS! He had it 12 years ago, but it wasn’t very severe at all. He was out of the hospital in less than a week and well in less than a month after that. We NEVER expected a relapse a dozen years later, and certainly had no idea exactly how BAD it would be! He is stuck in an LTAC hospital where they don’t seem to REALLY know how to treat it, as hospice was even mentioned a couple of weeks ago. My mother-in-law found your video on YouTube, and we have it to be very encouraging, as we work to move Daddy to another place, where my mom can stay with us and he will have care from staff more familiar with GBS.

  21. daiana says:

    Hi I want to know if I can talk to you I’m from Romania and this post is written by means of translation because I do not speak English. I want to tell you that my uncle is diagnosed with GBS three months paralyzed from the neck down the back and bone is inflamed because it could be a problem in recovery? Recovery of his doctors say they do not know a particular length depends on how your body responds to each patient moves very small fingers. wait for a response to Daiana 13 @ yahoo. com or Facebook Daiana stones. thanks

  22. Megan McElroy says:

    Hi Holly,
    Today is the one year anniversary of my GBS diagnosis and subsequent treatment. Coincidentally, I finished your book last night. My case was not as severe as yours, I had paralysis from the waist down but I also am a marathon runner who (at the time) had completed 11 full marathons and was training for my 12th. The symptoms, diagnosis, treatment and rehab were devastating to me. I can’t imagine having to go through this with a newborn baby at home.

    I wanted to thank you for writing your story. I laughed and cried with you but most of all, I caught myself saying over and over – I know exactly what she is talking about. I know what that feels like… Your story is so inspiring but more important makes things seem a little bit more normal (in a GBS kind of way). It also helped me realize that all the weird residual effects (tingling feet, balance issues, etc.) will probably always be a part of my life and my story, like they are for you. (And only someone who went through GBS can understand!)

    I wish you and your beautiful family all the best. Thank you for sharing!

    • hollygerlach says:

      Hi Megan! Thank you so much for the comment! I am so glad that you were able to read my book. As you know, with GBS being as rare as it is, I feel an instant connection with others that had GBS because we know exactly what each other has been through. It sounds like you are staying positive, which is so important! Thanks again for reading my book and I wish you all the best in life, tingly feet and bad balance and all that!!

  23. Anonymous says:

    Holly – I just wanted to share that I am a registered nursing student in Coeur d’ Alene, Idaho at North Idaho College. Your youtube video was shared during our neurological disorders lecture & I do believe it had the entire class of 38 in tears (sad at the beginning & happy at the end!) Your story is inspiring & so motivational to finish my degree & be able to help those who are infected by diseases like GBS. Your family is beautiful & I look forward to reading your book over Christmas Vacation. Thank you for sharing your story ❤

  24. We just found your video on YouTube. My husband (34 years old) is in the ICU on a vent right now with GBS. Your story gives us much encouragement. It is such a crazy disease.

  25. Raquel says:

    hi

    holly

    my father was diagnosed with guillain barre syndrome I would like you to help me help saying that it exercises in rehabilitation because here in mexico there are no doctors who specialize in this disease will greatly appreciate it because my dad cry every night for not to move

    sorry for my english

    regards

    raquel88@live.com

    • hollygerlach says:

      Hi Raquel, I’m sorry to here about your father. Are you wanting specific exercises? I’d have to know where he is at in his journey with GBS and then if be more than happy to suggest things that helped me.

  26. Anonymous says:

    Hi Holly, I seen your video on youtube and all I could do was cry! God was with you and your family during this very scary time. I am so inspired by your story, and your strength. What kind of exercise did you start out doing? God Bless you!

    • hollygerlach says:

      Thank you! When you say started out, do you mean after I had fully recovered, when I first got out of the hospital or when I was still in the hospital ? Sorry, there are so many different things I did during different stages of my recovery.

  27. Shane Sumlin says:

    Holly- I just found your website and your book and I am so excited. I am in month 19 with GBS and learning how to walk. My wife and family have been amazing and I’m trying to find my story in this and help others. Can’t wait to read the book. And follow your story on Facebook

  28. Fatin says:

    My dear Holly,

    This is Fatin, gbs patient.I hope that you and your family are doing well.
    I have a question, kindly advise when you were able to push your self into standing position without the help of your hands.

    my best regards
    Fatin

    • hollygerlach says:

      Hi Fatin, for me it was a little over 5 months before I could stand on my own. Please know that everyone’s experiences with GBS are different. It takes people all different amounts of time to reach certain milestones. But you will get there, don’t ever give up hope!!

      • Fatin Al Naib says:

        Hi Holly, thank you so much for your answer. I just saw it 😊and I’m really happy to hear from you😃😃 at the beginning of my illness i was without hope ( only my faith) but one day my sister brought me her laptop and showed me your video since that day i started working and keep watching your video several times a day😊 your journey is really very similar to mine, I also have your book happily ever after I read it three times and really when you were talking and describing your condition and feelings like me who were talking .Really very very similar. Now one year and one month passed and thank God im walking, started running for 30 seconds and then rest and re running for another 30 seconds but im still suffering from weekness in my left hand and using my hands in order to stand from low chaires and difficulty when climbing the staires. I really would like to thank you so much my dear holly for such inspiring video and book and washing to keep in touch with you as friends . Wish you and your family all the best. My warm regards Fatin

  29. Anonymous says:

    Saw your video on youtube and amazed at your courage and determination to fight GBS. Indeed you are an inspiration to many people and their families who are going through their own physical & emotional battles outside the “normal”. You have a wonderful family and hope you all the best ! 🙂

  30. I saw your story on you tube, i cryied all the time i watched the video. Thats amazing what you did!! I dont know if i could if that happens to me. Your strong and amazing!! Best of luck to you and to your family! 🙂 Greetings from Europe. 🙂

  31. Roger Anderson rcabledude@yahoo.com says:

    Hi Holly. I clicked on YouTube to see an amusing story, and your video was there. I was diagnosed on October 23rd, 2006 after eating some contaminated chicken in a restaurant containing campylobacter bacteria. Mine turned out to be Axonal GBS and I still have clenched hands and a drop foot and fatigue and pain are my everyday life. I have a supra pubic catheter, and I could talk to you for hours about my experiences. I too am writing a book with the experiences, and how to keep a positive attitude. I don’t want any money if it becomes a good seller as I believe in paying it forward. I really wish we had an opportunity to talk, but I wouldn’t invade on your family time or boor you with things you know. I use humor a lot, because even though it was painful at the time, you have to find the humor in it or go crazy. My e-mail I use for this is rcabledude@yahoo.com. I live in the Tampa area of Florida, but have family in Chicago and Detroit. That’s as far north as I ever want to go. Your story was there for a reason, and helped a little pain ease up as I’m getting ready for bed. My wife Mary and I just celebrated 39 years of marriage, and we have two grandsons. God bless you in your recovery and for you beautiful child who needs a healthy mommy. Roger Anderson

  32. Fatin says:

    Dear Holly, This is Fatin, GBS patient.
    Please help me by answering my question.
    when you were able to push your self into standing position without the help of your hands.
    Thank you

  33. Holy crap I’m shedding some serious tears after watching your video.

    I work at the CPA in Calgary and have met your mother a few times and i think she has a pretty amazing daughter. Holly thank you so much for sharing your story in the Spinal Colunms magazine I’m very happy for you and your family and wish you all the best.

    Kasey

  34. Fatin says:

    Dear Holly, my name is Fatin a GBS patient, I have almost your same conditions.
    Already passed 8 months. My question is when you were able to push your self into standing position without the help of your hand.

    Thank you and my best regards,
    Fatin

  35. Thenura says:

    I had gbs when i was 5 years old.. im very happy about you … that video made me cry… you are really really lucky … cheers…

  36. Anonymous says:

    Hi Holly, I just saw your video on you tube, truly inspirational and I believe that you are blessed in more than one way

    – You are blessed with a strong mind and spirit
    – You are blessed with an amazing family and a rockstar of a husbad
    – You are blessed with a beautiful child

    Be happy and remain happy

    Smiles

    Rahul Malhotra
    India

  37. Damian says:

    Yeah me too. Slowly improving, but not steady enough to really say for sure. Some days 80%, some days 40%. Symptoms go and come back. Nowadays I get a lot of “funnybone” type sensations in arms, hand, and legs. I feel like my strength is still there but I cannot focus or maintain it (like a car with a decent engine, but no gas). I am 40 years old and normally in decent shape, but all of this sure has made me re-evaluate things – eating and living better, Vitamin D etc.. I find nowadays I still have crushing fatigue and shortness of breath, especially when I am having a neurological attack. I tried to take a luke warm (97F) bath the other day and damn near wigged out. Was shaking and stuttering uncontrollably for 3 hours. It is indeed terrifying.

    My problem (and it is a good thing, but) is that I am not bad enough for much medical intervention. No pain meds, no medication at all. Very little discussion of prognosis. Again, the neurologist has made an appointment for 3 months here in Calgary. Not a lot of support from doctors quite frankly.

    • hollygerlach says:

      That must be frustrating. The right neurologist can make all the difference in the world. I hope things improve soon for you.

      • Damian says:

        HI Holly – an update. Not GBS after all. After much testing I have tested positive for antibodies to Lyme Disease. Had it since probably 2000 or so. Immune system gave up after 13 years of fighting. Up to 18 months of antibiotics.

      • hollygerlach says:

        Hi Damian! Glad to hear that you have been diagnosed ! That is often the toughest part, not knowing what is happening to you. Best of luck with dealing with Lyme Disease. Although I have no experience with that, all I can say is to STAY positive and work with what you can. Remember, life is short and no matter what the situation we are put into, we have to make the best of it.

  38. Damian says:

    Damian from Calgary:

    Bought a hot tub in January 2013. Never had problems with hot tubs or baths before. Entire limbs started going numb as a dead fish. Right hand cold and sore. Chest was sore for a week like “MS hug”. Could barely walk for a couple of weeks. Four trips to emerg. Two visits with a Neurologist. Much blood testing. MRI showed no MS. Symptoms come and go on a daily/weekly basis. Now nine weeks. What I am going through is nothing like what you experienced (at my worst I was at the 11:30 minute of your video LOL). Neurologist not sure if GBS or some other autoimmune attack. But this is hell. Now nine weeks later, feet still occasionally sore, right hand still going freezing cold. I go five days and get a bit better each day only to have things go to hell again. Last year I was running 5 k in 24 minutes, a few weeks back I could barely climb stairs. My legs felt like they were on fire and I was walking like a 90 year old man. Your video is very inspirational Holly! I am not bad enough to require hospitalization, and still go to work. It is a “come back and see the Neurologist in three months” sort of thing. They are taking it seriously, sort of. Just wish I could see a strong stable progression. Nothing is numb anymore and I am slowly getting better… Sort of…I am typically a see a doctor once every five years type. In order to use a computer now I need a space heater aimed at my right hand and the mouse to keep my hand from getting cold. This is hell. Anyways, great video and thank you for it.

    • hollygerlach says:

      Hi Damian, thanks for the message. No matter how serious of a case one has with GBS, it is still terrifying. The worst part is how long everything takes to return to normal. But don’t lose hope. My video is inspiring to see how I improve but remember that this is over a very long period of time. I hope you are able to get in to a neuro soon to find out if it is Gbs. Make sure you mention your pain because there are medications that can help. And take it easy. Don’t push yourself if you are exhausted. I hope your recovery is fast.

  39. fatima says:

    i was diagnosted with guillain barre syndrome 2 weeks after geaving birth

  40. russiablogeditor says:

    CIDP put me in a wheelchair the following year in 2003, up walking again after rehab in 4 mos by spring 2004 and yes by 2011 at 44 did have a minor stroke due to diabetes … but I continue editing as a freelance Newspaper Features Editor, staying active and moving and I love it when people say just relax – don’t bother with it. I come from a very Italian family you have to bother with it! Setting examples of hard work, character is exactly what people that need more of – again thanks for your book!

  41. John Osborne says:

    Wow … went through this as 34/35 diabetic Dad with 5 kids in 2001/2002 Christmas/New Years period while working from home after infection, unfortunately mine morphed to CIDP the chronic variant (my neuros were literally standing at the side guessing at times) … your GBS period was much more severe although I was almost vented twice … amazing story Holly, not many people know that these 2 diseases can even hit you until it happens – thanks for making it more public with the book!

    • hollygerlach says:

      Thank you for your words John! I am very happy to be spreading the word about Gbs! It is a very terrifying disease that is so unknown. Hope you are doing well and that you have a great support system!

  42. Bruce Kato says:

    Great work Holly. I also came down with severe GBS in May of 2010 and in the hospital for almost four months. Our journey, like “Kit’s”, couldn’t be more similar. I too, have become a “liason” to others who have been stricken with this crazy virus. The great thing about all of this (if there is a great thing), is that it absolutely invigorates me to help others. I’ve been contacted by at least a couple dozen people who have come down with GBS or they have close family or friends who have been stricken by it. I was 57 when this happened. Prior to my hospital stay at Cedar Sinai Hospital in Los Angeles, there was a 27 year old woman who came down with GBS (severe too) while 3 months pregnant. Her story was stimulating enough for me to get better. Just as recent as last week, I spoke with a friend’s daughter who came down with GBS last September. Your documentation is a wonderful tool to help others just like Kit’s helped me. “Happy Ever After” are three amazing words that can describe the perfect ending. Thank you.

    Happy New Year to you and your family and Happy “more”everlasting New Years.

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